Open
April 2023
... Current Studies / Beyond Study: Exploring well-being in the Canadian childhood cancer community

Beyond Study: Exploring well-being in the Canadian childhood cancer community

 

The COVID-19 pandemic has created striking and co-occurring challenges to the health and wellness of Canadian children and their families. Although the impacts of the pandemic are widespread, the COVID-19 pandemic may have put children with and survivors of childhood cancer and their family caregivers at increased risk of negative psychosocial health outcomes.

The Beyond Study aims to better understand the impact of the COVID-19 pandemic on the well-being of the Canadian childhood cancer community during the pandemic and beyond. With this initiative led by researchers at Concordia University and SickKids Hospital, we also want to learn more about patients’, survivors’, and parents’ psychosocial support needs, including during the pandemic.

 

Who can participate?

We are looking for:

  • Canadian youth (younger than 18 years old) who are currently receiving cancer treatment
  • Canadian youth (younger than 18 years old) who have received cancer treatment in the past
  • Their parents & caregivers
  • Bereaved parents who have lost their child (younger than 18 years old) to cancer

 

What will you be asked to do?

If you decide to sign up, you would be asked to:

  • Complete a short online survey (15-20 minutes)
  • Have the option to complete a virtual interview with the research team (30-45 minutes)

 

Interested in this study?

Email us at alberts.lab@concordia.ca or fill out this sign-up form to learn more about the study and to participate.

 

FAQs

I am a Canadian parent or caregiver of a youth (below the age of 18) who is currently receiving cancer treatment or who has received cancer treatment in the past. Can I participate WITHOUT my child?

Yes! Although we would love to hear from your child, their participation is completely optional.

I am a Canadian parent or caregiver of a youth (below the age of 18) who is currently receiving cancer treatment or who has received cancer treatment in the past. Can I participate WITH my child?

Yes! We would love to have your child participate in our study. They are eligible to participate if they are between the ages of 8 and 17 years old.

I am a Canadian youth (< 18 years old) who is currently receiving cancer treatment or who has received cancer treatment in the past. Can I participate in this study?

Yes! But we will need your parent’s permission for you to participate in our study.

I am a Canadian adult (≥ 18 years old) who is currently receiving cancer treatment or who has received cancer treatment in the past. Can I participate in this study?

Unfortunately, you are not eligible to participate in the Beyond Study as we are only recruiting youth under the age of 18 for this specific project. With that said, we will likely have future studies that will involve adult survivors of childhood cancer and we invite you to keep a look out for those!

How can I participate in this study?

Thank you for your interest in our study! Please fill out our short sign-up form (https://linktr.ee/thebeyondstudy) or send us an email us at alberts.lab@concordia.ca, and we’ll contact you to get started with the study.

I’m a Canadian parent or caregiver of a child who has passed away due to cancer. Can I participate in this study?

Yes, you are eligible to participate in this study! We value the input and feedback of bereaved parents.

ALL PROJECTS